Replies to @larrypt3b I had Surgery in 2010 at 62 and in 2014 had salvage radiation when my...

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BCR, Eligard, and a long trip... what do you think?

Prostate Cancer | Last Active: Jan 25 12:39pm | Replies (10)

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@jeffmarc

@larrypt3b
I had Surgery in 2010 at 62 and in 2014 had salvage radiation when my PSA hit .2. I had three reoccurrences after that, I have the genetic problem of BRCA2 and that’s why it keeps coming back. I didn’t find out about that until about five years ago.

They did give me ADT two months before my radiation, That can shrink Any tumors in the area and make it More effective to do the radiation. I was a 4+3, however, and you are a 3+4, so you may not need ADT for radiation. The thing is though your PSA started rising pretty quickly after your surgery and you are a pT3b so they may want to do it anyway.

I noticed you don’t mention having genetic testing. You really should talk to the doctor about getting hereditary, genetic testing. If you have cancer in your family prostate cancer, breast, cancer or pancreatic cancer for starters, it can be due to a genetic issue. There are drugs available only for people that have genetic problems. When the drugs I’m on now stop working. I am going to take one of those drugs.

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Replies to "@larrypt3b I had Surgery in 2010 at 62 and in 2014 had salvage radiation when my..."

larrypt3b | @larrypt3b | Jan 24 3:25pm

@jeffmarc
I WAS a 3+4 after biopsy, but that got shifted to 4+3 after surgery. The Radiation Oncologist here strongly suggested ADT had I chosen that instead of surgery 18 months ago so I won't be surprised if he does now. I'm trying to move up my appointment with him. My Urologist is skeptical about the PMSA PET scan bc he thinks it won't see anything. To me, not finding something is reassuring as long as it doesn't mean I can't get another one nearer to RT.
As for my family: We have a history of heart trouble or cancer (I got BOTH; lucky me!). My father died of cancer (unknown type; too advanced) at 62. 30+ years ago. He lasted 10 months and most of them were hard. My aunt (his sister) died of cancer last September (she lasted 18 months start to finish). She had genetic testing done at MD Anderson, but I don't have that data. There are others, but you get the idea. I think I will delve into that further. If nothing else, you can see why I feel like my hair is on fire (urgency) to attend to this cancer as best I can.
I thought the decipher was a genetic test. From what you're saying, its not?
I have heard from so many that: "Prostate cancer is what you die WITH, not what you die FROM". Your story is inspiring; keep the faith!