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Learned Something New Last Week
Prostate Cancer | Last Active: Jan 26 10:42am | Replies (26)Comment receiving replies
@robertov
You are not wrong had dramatic affect on PSA levels and starving PC.
I was originally scheduled to get hormone treatments before my Decipher test came back low risk. My treatment plan then changed from radiation with hormones to radiation only. From my medical doctors ADT starves the prostrate cancer from what it feeds on testosterones.
As I mentioned I did not get hormones so hate to comment on something I did not have. But I just met with my PCP and we went over PSA tests and the decision of medical providers of which PSA test they order depending on what is applicable to the patient.
Per my Mayo doctors and UFHPTI your lowest PSA is common not to see until 2-3 years after treatments end. You like me have a prostate so we are going to have PSA.
In my opinion, and not a medical professional, the lowest point reached probably has a lot to do that your prostate has gone through WWIII and going to be highly irritated for a long time thus not seeing your lowest PSA for years for most.
For you having the PSA at undetectable is great news after at 3 months. If you were on ADT you probably were seeing PSA dropped dramatically even before you got radiation is that correct? My PCP said to me and showed me a graph of PSA after a couple of years is an slight up and down number. The concern comes from an continuous rise every time PSA test is done.
My PSA prior to treatments was 3.75. My PSA test at 3 months was under 1. It then started going down and down and my last PSA at 2.5 years was .12 I am due in April for my next one.
At Mayo Jacksonville my PCP orders traditional PSA test for me and stated that < .10 is undetectable. They do a ultra sensitive test on those who underwent RP.
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@jc76 Thanks! I always appreciate your perspective. I have Gleason 8, so it was hard to argue no ADT. I also planned on 3 a month trip, which I decided was important. Being put on Orgovyx allowed me to squelch PSA, while I researched my options. The only option I was offered was IMRT and no other options. Not good enough for me.
On ADT I went from 5.74 -> 0.94 -> 0.41. Now undectible. I now realize I won’t know my nadir until I stopped the ADT and waited for testosterone to come back. Their recommendation was 18 months of ADT. I read recently JAMA article on how long ADT is needed after treatment for high-risk. Offering some hope. But with no nadir baseline, it is hard to make that call. I won’t really know how successful the treatment is for a couple of years.
My RO & team are just in ‘data collection’ mode and don’t really want to think about what I want. These are among the many things I should have understood but didn’t. Thanks for everyone for their thoughts through this!