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Vaginal Sling (TVT) Complications
Women's Health | Last Active: Mar 20 4:37pm | Replies (28)Comment receiving replies
@shauna18 I am very sorry to hear that you too are dealing with chronic pelvic pain and especially for so long with no answers. I too went from a career of working for a brokerage firm where I was an executive team member to now honestly feeling useless because I want to work and physically can’t. It’s not even the money, it’s for my mental health and I enjoyed what I did and the confidence it brought me because I was good at it.
I don’t feel like I get any answers from TAPMI other than being told this is something I need to accept will be my life or take more meds to manage the pain. I’m not willing to accept there’s nothing that can be done. I was put in this situation because I listened to my doctors and specialists tell me I needed to do this, I proceeded and now I’m left to feel like I’m standing in a desert alone fighting with no light in sight. This surgery was to change my life for the better not be life altering for the worse. I rather have had incontinence issues and be pissing myself all the time then not be able to walk or be physically active with my kids like I used to be. Not to mention the emotional impact that comes with it when my kids want to do something and mom stays home while they all go because I don’t want to hold them back.
I find I am constantly researching or looking for new treatment methods. I also was never a pill popper and only ever took Advil for migraines and I’d tell you the meds they prescribe don’t even help. The CBD oil I now take, takes the edge off more. I tried Osteo and truthfully it did nothing. The combo of physio and chiro multiple times weekly helps more but the out of pocket expenses that comes with this doesn’t. Thank you for reaching out and sharing your journey.
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@trisha85, you have been through a lot and I imagine every new thing you try is exhausting. I am so impressed by your ability to go through this and manage all that goes along with it. Kuddos!
I am a patient at Mayo Clinic. I was told when I got there in 2022 they knew what was happening but weren’t sure what to do about it. They have taken an integrative approach effective for my systemic symptoms. It would be about protecting my heart then taking one symptom at a time, and that is exactly what we have been doing. I was it would be a marathon. Like you, I have been going through a marathon. Everything my care team has done has incrementally helped my quality of life, also handle with extreme compassion. I do not want to think of where I would be with them.
It has been difficult to turn into a person I do not recognize. Like you the physical part is not all that is affected. Mind, body and spirit all deal with the same experience. My approach has been to only focus on the next best decision then work that direction. It is the only way I know of to make progress. I say this to encourage you to keep going. You can do this!
Not sure if you are open to yet another try, but I will provide a link to contact Mayo Clinic for an appointment. I imagine they may be able to tell you with pretty good certainty if they think they could help you without you making the trip, rather by reviewing your testing that has been done already.
What is your biggest daily challenge? Have you found anything that provides relief, or you think helps you?