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trisha85 avatar

Vaginal Sling (TVT) Complications

Women's Health | Last Active: 1 day ago | Replies (3)

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I am so so sorry. Unfortunately, I can relate - I have been experiencing chronic pelvic pain for 10 years. I too am with TAPMI. They have yet to figure out what is causing my pain. I also have extreme urinary urgency - sometimes having to go every 15 minutes because it's just too painful to hold.
I wish I had a suggestion for you but it sounds like you've done everything I've done. Have you seen an osteopath? some people swear by them.
I'm feeling that there us some connection with exterior colon scarring from Ulcerative Colitis flares touching my bladder and urethra.
My life too has been drastically impacted - from having a very public career in the city to now having a very small life in the country.

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Replies to "I am so so sorry. Unfortunately, I can relate - I have been experiencing chronic pelvic..."

@shauna18 I am very sorry to hear that you too are dealing with chronic pelvic pain and especially for so long with no answers. I too went from a career of working for a brokerage firm where I was an executive team member to now honestly feeling useless because I want to work and physically can’t. It’s not even the money, it’s for my mental health and I enjoyed what I did and the confidence it brought me because I was good at it.

I don’t feel like I get any answers from TAPMI other than being told this is something I need to accept will be my life or take more meds to manage the pain. I’m not willing to accept there’s nothing that can be done. I was put in this situation because I listened to my doctors and specialists tell me I needed to do this, I proceeded and now I’m left to feel like I’m standing in a desert alone fighting with no light in sight. This surgery was to change my life for the better not be life altering for the worse. I rather have had incontinence issues and be pissing myself all the time then not be able to walk or be physically active with my kids like I used to be. Not to mention the emotional impact that comes with it when my kids want to do something and mom stays home while they all go because I don’t want to hold them back.

I find I am constantly researching or looking for new treatment methods. I also was never a pill popper and only ever took Advil for migraines and I’d tell you the meds they prescribe don’t even help. The CBD oil I now take, takes the edge off more. I tried Osteo and truthfully it did nothing. The combo of physio and chiro multiple times weekly helps more but the out of pocket expenses that comes with this doesn’t. Thank you for reaching out and sharing your journey.