← Return to Hypermobile Ehlers Danlos Care Team at Mayo Clinic?

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Profile picture for sanderson23 @sanderson23

I am talking to my local doctor next week, but I think they are going to agree to refer me to Mayo for complex headache problems (refractory migraine and cluster headache) and Hypermobility Spectrum Disorder that affects my neck and therefore, the migraine. The only location I can really get to is Arizona. I know the EDS clinic is in FL. I am trying to figure out if it is worth going to AZ or not as it is a big trip for me, but I really cannot get to FL. Do I try to get seen by just Neurology for the headaches and have them decide if I need to see anyone else? Or is there another specialist I should try to schedule with while I am there for the HSD? It is a big trip, as I said, and I want to be sure I make appropriate appointments and arrangements so that I maximize my experience there. I don't want to find out I should have scheduled with physiatry or some other department but then cannot get in while I am there for Neuro as I didn't schedule ahead of time, if that makes sense.

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Replies to "I am talking to my local doctor next week, but I think they are going to..."

@sanderson23, neurology in Arizona is excellent. You'll be in good hands. Did you and your doctor decide to submit a referral to Mayo Clinic AZ?