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Cholangiocarcinoma - Mayo Clinic Rochester. Are there other patients?
Liver Cancer | Last Active: 5 hours ago | Replies (29)Comment receiving replies
@claudia0811
Thank you for your reply. Mayo did not recommend chemo pre-op. I did that chemo regimen after Capecitabine, but it was not very effective.
Yes, I have a copy of the genetic testing and the gene mutation is identified. And there are 3 studies that address this mutation. And I hope to start on one of them soon.
I am glad that you are feeling good too.
denvergirl
Replies to "@claudia0811 Thank you for your reply. Mayo did not recommend chemo pre-op. I did that chemo..."
@denvergirl
You are on my prayer list. My oncologist from Vanderbuilt said the targeted treatments are very good.
Do you know which targeted treatments will work for you according to your genetic testing.
My dr at Vanderbuilt said I will be on Futibatnib if the cancer comes back. Not sure if it would be the same cancer and treatment after I find out about the nodules in my lungs. I will have to have a biopsy that I guess I’ll see.
Hang in there and be strong!
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@denvergirl What gene mutation do you have? Thanks.