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Michael Lipson (Nospil Musics) avatar

Has anyone been diagnosed with Sacral CHORDoma?

Sarcoma | Last Active: 7 hours ago | Replies (14)

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Profile picture for bobisaacs @bobisaacs

A chordoma diagnosis can be a shocking thing. I know, I was diagnosed with chordoma about a year ago. It’s been quite a journey. The MOST VALUABLE resource I have found is the Chordoma Foundation. Look to their website for information, support and even Doctor recommendations. Important since chordoma is a VERY rare cancer (one in a million!). Good luck and please post your journey.

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Replies to "A chordoma diagnosis can be a shocking thing. I know, I was diagnosed with chordoma about..."

@bobisaacs, what was your treatment plan? How are you doing now?