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Michael Lipson (Nospil Musics) avatar

Has anyone been diagnosed with Sacral CHORDoma?

Sarcoma | Last Active: 7 hours ago | Replies (14)

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Profile picture for bluestuart @bluestuart

Good evening everyone. Last February I woke up one Sunday morning and I saw 2 of everything. I went to the emergency room, driving myself, of course. With an extremely high blood pressure, they thought I was having a stroke. They put in an IV as we were wheeling to CT. After my scan, the doctor told me I had a pituitary adenoma, usually benign, usually not cancerous. Surgery followed a few months later and the surgeons believed they removed it all. Pathology came back as a chordoma. Vision has returned to normal and I have done well for 6 months. Last weekend I had my first follow up MRI and the results are less than optimal. I now have 3 tumors in that same area. I meet with my neurosurgeon next Wednesday to discuss the scan and treatment options. I have come here simply to have a group to talk to. People who understand. My doctors are awesome, so I am not afraid, but sometimes I have questions and it's easier to ask than to research for hours.

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Replies to "Good evening everyone. Last February I woke up one Sunday morning and I saw 2 of..."

@bluestuart, how did your appointment with the neurosurgeon go? What's the treatment plan? Seeing 3 new tumors must've been a real gut punch. How are you doing?