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Neuroendocrine Tumor - no treatment plan method
Neuroendocrine Tumors (NETs) | Last Active: Apr 7 1:09pm | Replies (129)Comment receiving replies
@dadcue With a "possible diagnosis of NET," it would certainly be wise to follow up, Mike. NETs, like other cancers, are best diagnosed and treated in the early stages. I hope you keep in touch and let me know how you are doing with all of this.
Will you continue to post?
Replies to "@dadcue With a "possible diagnosis of NET," it would certainly be wise to follow up, Mike...."
I have reviewed the CT-scan report which says ...
"Short segment wall thickening at distal ileal small bowel loop. With nearby ileocolic mass (3.8 cm) and adjacent enlarged lymph node, please correlate for neuroendocrine tumor."
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This annual CT-scan was done last Feb 2025 and was monitoring my kidney stones. Nobody said anything about a mass last year. The CT-scan without any contrast wasn't looking specifically for a neuroendocrine tumor but now they are going to look more closely. I'm wondering if it is possible or not based on this incidental finding.
I still don't think I want to get too worked up about this. I still like the idea of "no treatment." Any thoughts?
Along with some labs and a GI consult ... I'm supposed to do a capsule endoscopy.
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@hopeful33250
I'm not too worried about it yet. It was just something on an abdominal CT scan report that was only looking at my kidney stones. The urologist never said anything about it. My PCP brought it up at a routine follow-up visit. My PCP sent a GI consult to see if anything needed to be done. I don't mind doing the labs. I just think a capsule endoscopy seems like a bit much since I'm not symptomatic. Some things I would rather not know about.