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← Return to Experience with FluBu4 ?
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Transplant/ Day 0 is Feb. 10th. I’m going in Feb. 3rd to prep and start FluBu4. I’ve done all pre-tests that I can at this point I believe (pulmonary, echos, ekgs, etc.)
Replies to "Transplant/ Day 0 is Feb. 10th. I’m going in Feb. 3rd to prep and start FluBu4...."
@andreak78
I’ve been in your shoes, the same as Lori. Keep your eyes on the prize. I’m coming up on 3 years post transplant. In some ways my new life is better than the first because I relish every day and have such gratitude. I’m back to climbing mountains and enjoying a new grandson. You can do this. If you ever saw the original Wizard of Oz, it’s like when it changes from black and white to being in color! A beautiful life is waiting for you up ahead.
@andreak78 there is a lot of wisdom and experience in the previous comments from @loribmt and @g4c. I too had a SCT at Barnes in St. Louis. I celebrated my 1st re-birth day on January 23.
You will have many days that challenge you but stay focused on what matters and remain as active as you can.
The nurses on 8,9 and 10 at Siteman are second to none. Dr. Patel is my favorite. He was very helpful to me and active in my recovery.
Good luck to you. The other side is a good place.
Hi @andreak78. Thinking of you this morning. Tomorrow’s the big day to start the next chapter of your life with the BMT journey, so I can appreciate the mixed bag of emotions you’re most likely experiencing today.
You’ll get through this just like you did those months of dealing with the AML chemo and Rydapt…one day at a time. But those treatments could only take you so far. Having transplant should help ‘seal the deal.
You have a bunch of us BMT members following along on your Team Andrea journey, along with your brother, who is your donor! How cool is that! 🥰 Sending an air hug!
So when you feel up to it, will you please keep us updated?
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@andreak78 With the pre-testing out of the way it looks like you are all set then for the biggest adventure of your life. Having had AML myself, I know what you’ve already been through and the thought of having more chemo pre transplant isn’t on the list of fun things to do! The FluBu4 will be similar to the FluMel that I had (5 days of fludarabine-2 days melphalan concurrent). It’s subtly more intense than what you’re used. (Can’t believe I actually wrote that…like we get used to chemo. But you know what I mean.) Anyway, the chemo will clear a pathway for successful transplant. So hang in there!
I’ll be popping in from time to time to see how you’re doing. But please don’t hesitate to join conversations or give progress reports! We’re here for you.