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Off Prednisone but still feeling new type of pain
Polymyalgia Rheumatica (PMR) | Last Active: Feb 9 8:26am | Replies (115)Comment receiving replies
@lbk67
For how long are you on low dose? And how low?
All I can say is I was so depressed this was my life now forever. Sudden after 9 months the morning pains went away!!
Keep the faith !
Replies to "@lbk67 For how long are you on low dose? And how low? All I can say..."
@abbeyc Yes - I am trying.
@abbeyc
I take 2.5 mg. for a year or maybe more. I tolerate the presnisone well, but 2.5 doesn't do much. If I take 20 mg, I am cured the next day. Then I get depressed because I realize how I should be feeling. I know the pain is gonna come back.
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@abbeyc
I remember when my rheumatologist told me that I couldn't take Prednisone for the rest of my life. I told my rheumatologist that I had been on Prednisone for half my life already. I didn't think I had that many years left so why not take prednisone for the rest of my life?
I lost all hope of ever getting off Prednisone. I was encouraged to take prednisone for the rest of my life so that discouraged and depressed me even more. Then suddenly a different approach to treating PMR was tried. Suddenly I was off Prednisone completely for the first time in more than 30 years. Now I have been off Prednisone for 5 years.
Keeping the faith is important!