← Return to Experience with FluBu4 ?

Discussion
Comment receiving replies
Profile picture for andreak78 @andreak78

@loribmt Thanks for the welcome! Yes, I'm AML with FLT 3 genetic mutation. I had bone marrow biopsy #5 yesterday and got a lot of details regarding transplant from my team. I'm growing quite anxious! I just want everyone in our house to stay healthy and my brother (donor) to stay healthy as well. It's been 3 months getting to this point and I'm so ready for the next step toward healing/recovery to begin! I've been shaving what little hair I have because I assumed the pre-SCT chemo would wipe it out again. So, thanks for mentioning that. I figured fatigue would be another one. I try to walk the hallways and move about my room when in hospital. We're anticipating a 4-6 week stay in-patient.

Jump to this post


Replies to "@loribmt Thanks for the welcome! Yes, I'm AML with FLT 3 genetic mutation. I had bone..."

@andreak78. You’re doing everything right! Learning what you can, but don’t overload. Your BMT will guide you along. My doctor made it a point of telling me that my only job was to focus on recovery. To ‘leave the worrying to him and his team.” And I did! I never lost a night’s sleep from worry.

I know from experience that anxiety builds when thinking about the logistics of all of this, realizing how many little duckies have to line up perfectly! But things do all seem to just fall into place and move forward. Once you’re in the hospital, at least for me, the anxiety melted.

If you can, encourage your brother and family members that are around you to mask up in order to stay healthy to protect you! Basically following Covid protocol so that your brother can fulfill his donation and that you can get on with the BMT!
And yes, sadly hair loss is to be expected around day 10 post BMT. My little stubbies that had been about 1/4 inch, all said goodbye overnight in a mass exodus…for what I hoped was the 4th and final time! And it was! The first little fuzz started reappearing around the 100 day point and went gloriously from there. Though I have to admit, I was loving the ease and confidence of the cue ball look!

If you don’t mind sharing, what’s your timeline for the BMT? When’s your pre-flight testing and the scheduled re-birthday?