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What does the future look like for a stage 4 NET patient?
Neuroendocrine Tumors (NETs) | Last Active: 3 days ago | Replies (37)Comment receiving replies
Missterri,
I had those symptoms as well, the lobectomy really helped and the chemo and proton rad worked as well to relieve them. I know for me that staying active with physical training has been my life saver. Its hands down the best medicine in addition what they do for me at Mayo. The two together are powerful. I'm seeing an integrative medicine oncologist doc to dial in the exercise/intensity with nutrition with sleep/stress with my condition and medicine. Personally I feel this is really important for us all. The Sandostatin/Octreotide that I take every month seems to be a positive as well.
Replies to "Missterri, I had those symptoms as well, the lobectomy really helped and the chemo and proton..."
@jameshoch Thanks for sharing. I was not familiar with integrative medicine oncologist. How have they helped you with your sleep?
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@jameshoch
Thank you for the information. I unfortunately have POTS and have dealt with a post-viral illness that causes post-exetional malaise. I have to be very careful not to outpace my energy envelope during activity, or I will crash. I do hope one day to be back to my former abilities!