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MAC & Bronchiectasis | Last Active: 13 hours ago | Replies (28)
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@macsucks
That is a rather high dose of ethambutol. Ethambutol can cause vision loss and you need to see an ophthalmologist at least every 1-3 months. I researched this after becoming legally blind due to ethambutol. Vision loss is rare, but can be permanent and devastating.If you give me your email, I’ll send you a copy of my research. Mine is chryl_hys@yahoo.com
Replies to "@macsucks That is a rather high dose of ethambutol. Ethambutol can cause vision loss and you..."
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@sma2 Wow. I have an appt. with the MAC doc in a few weeks and I will ask him about this. So sorry to hear of your vision loss. I am really torn about treating MAC versus just letting it do its thing.