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I have reoccurrence Nets side effects of cap/tem

Neuroendocrine Tumors (NETs) | Last Active: 5 days ago | Replies (20)
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Profile picture for Turkey, Volunteer Mentor @tomrennie

@mnob I know what that is like. I have the same thing. How long ago were you diagnosed?

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Replies to "@mnob I know what that is like. I have the same thing. How long ago were..."
mar | @mnob | Jan 21 2:25pm

@tomrennie I was diagnosed in January of 2024. Unfortunately, since I had very few symptoms the tumor in my liver is quite large. I'm on my third oncologist as the first two said I only required the Lanreotide injections, yet the tumor continued to grow. Finally the third oncologist couldn't understand why they hadn't had me on CapTem also. What a learning experience this has been.

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