@lisalucier
I had an intermittent pain behind one ear for several months and was advised to go to an ENT. At that appt. the doctor while feeling my neck, stuck her fingers in deep and caused lightening bolts of pain in my neck. This started nerve burning attacks and zaps all over my face that then moved into my head within 2 months, and everything has gotten worse ever since. I rarely even had headaches before all this.

@lisalucier Hi Lisa, sorry for the delayed response. No incident that precipitated these symptoms that I am able to recall unfortunately. This has been quite the struggle to figure out.

I checked into the ER at a local hospital last month where a lumbar puncture was performed. They determined that my CSF pressure was on the far lower end of normal and decided to perform a myelogram. A possible CSF venous fistula was discovered from that test and I am now undergoing further testing (additional myelograms) to confirm. I am praying to get some answers as this has been so difficult to deal with.