← Return to Your tips for recovery after 35 radiation treatments for tonsil cancer

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@lizzyj58

15 weeks post radiation and taste still very limited. PET scan is today will know results in 2 weeks. This is still a difficult slow journey I never dreaming of experiencing. I miss my taste so very much can taste some things but many things no taste yet. I keep reading it will take 4 to 6 months to see noticeable improvement do not know how accurate that is. How is your husband doing with treatments hope things are going well.

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Replies to "@lizzyj58 15 weeks post radiation and taste still very limited. PET scan is today will know..."

@dragonfire Same situation here,he finished his treatments Dec 31st. Some days he can taste savory for a little while then next day can only taste sweet. He gets breakthrough taste that lasts about 30 mins then nothing. Just like you, very frustrating. For some reason he can taste BBQ sauce! Dr said it takes time but not much consolation in that. He had 15 radiation treatments and 2 chemo sessions. I can't imagine how you must feel after all your treatments. I sincerely hope you get good news woth your pet scan results. Can you taste coffee? How about ice cream? Dr said to look on eating as a chore,that's exactly what my husband is doing. Not easy at all but at least treatments are over.

@dragonfire just an anecdote here - my taste also disappeared but eventually came back. Shortly after my treatment a friend of mine came to visit and brought some expensive chocolates. When I took the first bite it was totally shocking - absolutely no sweet taste instead just the bitter chocolate, like taking a tsp. of powdered chocolate. Now the only thing I notice (20+ years later ) is having lost the ability to differentiate red wines and most hot pepper sauces are equally hot.

@dragonfire I can assure you, even though things seem dreadful now, they will get better. Your life has been changed to save it, and sometimes that is hard to accept. I'm 20 years out and have gotten to be a part of my 4 grandkids' lives. Though I wish the treatment wasn't so brutal, I'm glad for the opportunity it gave me to live my life. I wish the same for you. Good luck!