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Intrathecal Pain Pump

Chronic Pain | Last Active: Jan 23 9:34am | Replies (131)

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Profile picture for lynnsaunders @lynnsaunders

@carolynhughes75 How did they determine you had arachnoiditis? How did you handle needing to come down from the meds before having it removed? How soon after having it removed did you start feeling better and did the arachnoiditis heal? Thanks.

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Replies to "@carolynhughes75 How did they determine you had arachnoiditis? How did you handle needing to come down..."

Hi Lynn. You can see my arachnoiditis on MRI. It causes nerves to get
bunched together and then those nerves cannot conduct and do what they need
to do. I take Indomethacin for the arachnoiditis pain and it helps some. I
weaned my pump slowly and just had to deal with the pain. Unfortunately
arachnoiditis cannot be healed. My goal was to control the arachnoiditis
and for it to not keep advancing. Arachnoiditis can get to the point where
someone can require a wheelchair. I hope you don't have it, cause it is
very painful.
Best wishes to you.
Carolyn