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MAC Medication Side Effects

MAC & Bronchiectasis | Last Active: 12 hours ago | Replies (28)

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Profile picture for namd @namd

Hi there, I cannot remember what dosage I was on but I took the big 3 on a daily basis for 14 months. I did not know much about my treatment, trusted my consultant and took the meds. Looking back I wish I knew more. I lost 2 stone in weight and was already slim. I should have taken a probiotic as had a lot of stomach issues. You might be lucky everyone is different. I would advise you to keep a diary of how you feel on a daily basis. Keep up with airway clearance I did not know this existed 3 years ago. Ask lots of questions as knowledge is power. I was free from MAC for a year after treatment but sadly it has returned. On watchful waiting at the moment. Wishing you the best of luck with your treatment. Some amazing information to be found here

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Replies to "Hi there, I cannot remember what dosage I was on but I took the big 3..."

@namd Thanks for the info. I have been told by multiple doctors including the one I am seeing that MAC never ever goes away. It may get better after 12 months of meds but it will always be there. Not sure what you mean regarding the airway clearance. Is that a nebulizer which I am using along with a trelegy inhaler?
If I do not get better in the 12-14 months, I will be done taking these meds. There must be tens of millions of people walking around with MAC that don't have a clue and they are not the worse for wear with it. I think it might be all voodoo. LOL