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Cholangiocarcinoma - Mayo Clinic Rochester. Are there other patients?
Liver Cancer | Last Active: 12 hours ago | Replies (29)Comment receiving replies
denvergirl here - I too am interested in hearing from other people with cholangiocarcinoma. I was diagnosed in Aug 2024 and also had surgery by Dr Patrick Starlinger at Mayo. Surgery was successful with clear margins. However, after 6 months of Capecitabine, the cancer returned. I then did infusions with cisplatin and gemcitabine and Durvalumab. This regimen was also not effective, so I hope to start on a trial med soon.
Does anyone else have this experience, and if so, how did you proceed? The good news is that I feel fine.
denvergirl.
Replies to "denvergirl here - I too am interested in hearing from other people with cholangiocarcinoma. I was..."
Hi,
I also had resection. surgery with Dr. Starlinger, clear margins, nothing elsewhere same as you. I’m about to start the post surgery chemo but was told if it returns I also can join a clinical trial so please let us know how that goes. Is the trial at Mayo?
I hope the trial gets it all!
@denvergirl
Sorry you have been going through all this. Did you also do the cisplatin, gemcitabine and Durvalumab before your surgery for 6 months? I did. Do you have a copy of the report on the genetic testing? If so, did they find a targeted treatment for you?
Glad you r feeling good. Me too but Not as I felt before all this 🙏🏼🙏🏼🙏🏼
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@denvergirl
Hey Denvergirl - I was diagnosed Aug 2024 had 1/3 liver removed no evidence of spread but took 3 months Capecitabine side affects too bad doc took me off so Dec 18, 2025 last pill and just monitoring every 3 months and so far NEC but many lung nodules watching 🤞🙏