@laura1961
I completely agree with Chris. It can be extremely frustrating and overwhelming when you feel like the doctors aren't helping. My advice is to never give up. Keep fighting until you find the doctor who understands and is knowledgeable about what you're going through and knows how to help. We were very lucky to be able to get in with Mayo Clinic. They have been wonderful and are very thorough. My son also has the diagnosis of Mesial Temporal Sclerosis and didn't start having seizures until adulthood. We have been through so many doctors, I've lost count. However, once you find the one, your life will change and your stress will decrease. I'm glad you found this group. Everyone here is very helpful, encouraging, and dedicated. You have friends here that are on your side. I wish you luck and as always, feel free to reach out if you have questions.
Take care,
Kerry