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Relapse after BMT

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Feb 15 2:31am | Replies (31)

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Profile picture for gmacd @gmacd

@loribmt That is so good to know! We keep thinking maybe he's too old to go through all of this, but honestly, he's in good shape. His heart, lungs, kidneys, etc. are all strong and he even still walks very briskly. The other day we both walked from one end of the Mayo complex (we're in Jacksonville) to the other and then back to get the car. He barely breathed hard. I had a hard time keeping up with him. So I'm taking that as a good sign.
The main issue he's been having is his platelets. They will get them up to, say 30k and the next day they'll be back down to 8k, and on and on. They've been infusing him with platelets every other day for over a week and they keep coming down. So they're putting him in the hospital tomorrow to start the Car-T chemo prep and keep his platelets controlled better than if he's at home. Which is a sigh of relief for me.
Hopefully I'll have some good news to share soon!
Thanks so much for the info, it really does help!!

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Replies to "@loribmt That is so good to know! We keep thinking maybe he's too old to go..."

@gmacd
I follow Lori and her post and found yours. I had MDS and a BMT. All your husband is having is what i am reading about. Until you or someone you love has a blood cancer, it is crazy seeing all that can potentially go wrong with any of us. As a former platelet donor, I hope plenty are on hand to give your husband what he needs through this Car-T chemo prep.
One thing i do know is these transplant medical teams know what they are doing. A cure for us and success for them.