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Living with PN, do you find yourself retreating from life?
Neuropathy | Last Active: Mar 5 10:44am | Replies (144)Comment receiving replies
Hi, John
I've been using your advice, suggesting places where the in & out are less challenging for folks with bad balance, and, happily, my friends are almost always quick with good suggestions. I've this one buddy with whomI've been doing Wednesday afternoon coffee dates for going on 10 years. In my pre-PN days, we'd try different coffee shops, roaming the metropolitan area. When my PN became an "issue," I asked my buddy if we might confine our caffeine watering holes to only those with generous parking lots, few (or better yet, no) steps, tables widely spaced, etc. We've now narrowed down our Wednesday destinations to only those that meet those specifications to a T. So, definitely, suggesting places more welcoming of a fellow with PN is an excellent solution to a frustrating problem.
Cheers!
Ray
Replies to "Hi, John I've been using your advice, suggesting places where the in & out are less..."
@ray666
Hi Ray,
Thank you for sharing. I'm where you are. Trying to make the best of life when I'm being slowly stripped of so much because of this insidious disease. It's nice to hear that others are not giving up on little bits of joy, like seeing friends and making a point of reaching out to them to find ways to make social activities possible. So after your post I think I'll make it a point to at least write to some people I enjoy being with and know that they would like to hear from me. I've been hiding out pretty much all of 2025. I was hospitalized 5 times and aside from the exhausting experience, my PN has also gotten worse with added hand tremors and such which make me feel less than able to socialize. I need to give it a go though and see how I feel about getting out of my shell. Slowly. I'll try to keep up with everyone's posts. Be well.
Betti
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@ray666
Were you the one who asked about what type of water "tank" the PT shop had that I go to? If so, it is a HydroWorx and the model is "Rise". It has an underwater treadmill, a seat for seated exercises, plus lots of grab bars. It's a good way for me to get strong enough to go to a public pool to join the Mobility in Water class, which I attended regularly a few years ago. The tank challenges because of the resistance of the water and and the same time assists because of its bouyancy.