← Return to Responsive neurostimulation (RNS) as an epilepsy treatment?

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@absentsenior - I moved your post here to this discussion so that you could talk with others who have chatted about responsive neurostimulation (RNS) and its surgical implantation for epilepsy:

- Responsive neurostimulation (RNS) as an epilepsy treatment? https://connect.mayoclinic.org/discussion/rns/

Hoping members such as @barbj7 @caseybach @heal33 @bonton can speak to how they and their doctor decided to proceed or not proceed with this option for themselves or for a loved one. If they did do the surgical implantation of the RNS, I'm hoping they can talk about how the surgery and recovery went, and how it has worked since then. @santosha @brjudevo79 @grammy82 and @jakedduck1 also may have some thoughts to share about RNS.

Has your neurologist or epileptologist recommended temporal lobe RNS surgery for you, absentsenior? How do you feel about this option?

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Replies to "@absentsenior - I moved your post here to this discussion so that you could talk with..."

@lisalucier The surgery is scheduled with many tests prior. I've not had much luck with drugs. I seem to attract negative side effects. As mt Neurologist told me in the beginning. "We have to find a cocktail of drugs that will control your seizures and that you can live with the side effects". My epilepsy has grown or spread from originating in my right temporal lobe and bouncing to my left, to originating in both temporal lobes. My memory was once described as a library with seizures being storms that damaged and destroyed the books (memories) in the library. I've reached the point that too many books have been destroyed and cannot be replaced, that now the librarian herself is at risk. Surgery has always been the absolute last resort for me. Really. Who wants anybody tip toeing thru their brain. Hopefully they'll find all the weeds.