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Are others with GCA and PMR on Tyenne Monthly Infusions?
Polymyalgia Rheumatica (PMR) | Last Active: Mar 14 2:01pm | Replies (58)Comment receiving replies
@jabrown0407
I just wonder if we all should be tested for GCA even though we don’t have the classic symptoms. This may sound strange but when the shower spray hits my lower arms it is painful. I dismiss it as to the fact I have no fat protecting my veins from the impact, but just wonder if it’s something else….And my veins on my hands protrude.
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@caroljeand There are no blood test for GCA Vasculitis. It requires a CT, MRI and/or PET Scan to Dx GCA with no cranial symptoms. Go for it if you can talk your doctor into it. In retrospect I wish I would have written my symptoms down and presented a rather long note to my Rheumy explaining my concerns. She would not have been able to dismiss them in the same manner that she did when I only spoke of them during appointments - a very expensive health care mistake. I am a strong advocate for myself and in this situation I failed me. I am working with the hand I am delt and trying not to look back except to benefit from the 20-20 view.