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@jabrown0407

My neuropathy was "evaluated" by a neurologist and was dismissed the same way. An EMG and nerve conduction study was done which confirmed "diffuse neuropathy." I never complained about my arms being numb but the nerve conduction study confirmed neuropathy was present in my arms as well.

I asked what was causing the neuropathy. As I recall ... the answer was, "We don't know so it is idiopathic since I wasn't diabetic." I remember thinking if they didn't know what caused the neuropathy then they probably didn't how to stop the neuropathy.

Since getting off Prednisone, I swear the neuropathy is improving but I'm not completely sure. I mentioned doing another nerve conduction study to my primary care doctor to see if it was improving. The answer I received was, "As long as it is getting better there isn't any need to do another nerve conduction study." I guess I will never know why I have idiopathic polyneuropathy.
https://www.hopkinsmedicine.org/neurology-neurosurgery/specialty-areas/peripheral-nerve/idiopathic-polyneuropathy
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I even have foot drop from polyneuropathy that they say won't get any better at this stage. As a patient with foot drop they gave me an orthotic brace to wear to hold my foot up when I walk.

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Replies to "@jabrown0407 My neuropathy was "evaluated" by a neurologist and was dismissed the same way. An EMG..."

@dadcue I have had nerve conduction test due to it thanks to my neurologist - I consider that test the lie test 'cause I would tell them anything they want to hear to get them to stop. I had the test several years before due to other symptoms, totally unrelated. It was after this conduction test that the neurologist suggested I request a vasculitis test, I did, my Rheumy's NP ran an ANCA and it was negative - that was in 2023. Unfortunately, GCA Vasculitis is not an ANCA Vasculitis, and my medical education had not covered that detail so I did not know enough to pursue it further. I received most of my historical medical education from Reader's Digest - then it was Dr Google and now it is Dr AI.