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DiscussionAre others with GCA and PMR on Tyenne Monthly Infusions?
Polymyalgia Rheumatica (PMR) | Last Active: Mar 14 2:01pm | Replies (58)Comment receiving replies
Replies to "@jabrown0407 My neuropathy was "evaluated" by a neurologist and was dismissed the same way. An EMG..."
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@dadcue I have had nerve conduction test due to it thanks to my neurologist - I consider that test the lie test 'cause I would tell them anything they want to hear to get them to stop. I had the test several years before due to other symptoms, totally unrelated. It was after this conduction test that the neurologist suggested I request a vasculitis test, I did, my Rheumy's NP ran an ANCA and it was negative - that was in 2023. Unfortunately, GCA Vasculitis is not an ANCA Vasculitis, and my medical education had not covered that detail so I did not know enough to pursue it further. I received most of my historical medical education from Reader's Digest - then it was Dr Google and now it is Dr AI.