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Chronic severe nocturnal hypnic headaches

Headache & Migraine | Last Active: Jan 22 6:15am | Replies (287)

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I was diagnosed w/ hynpic headaches almost 3 years ago. Generally get every night with VERY few exceptions. I take Imitrex every time I get headache (tried all the preventative treatments) which always gets rid of headache. For a long time the only problem was waking up with headache every night but then started having strange facial pain most often during day, usually behind my nose (feels like I got punched in nose (not sinuses)), sometimes teeth and got referral to Stanford pain clinic. They said they think facial pain is migraine but no recommended treatment since I've tried just about every possible migraine treatment. Anyone else had this? They told me to try to get off the Imitrex (high risk and could be experiencing overuse issues; my neurologist has always said if getting migraine every night and nothing will prevent, take the Imitrex). To avoid Imitrex, for about a week been drinking espresso at headache onset during night and seems to be helping (didn't in the past) but facial pain worse the next day after not taking Imitrex. Feel better after normal morning coffee. All just seems more complicated than when I only got a very predictable headache every night couple hrs after going to sleep

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Replies to "I was diagnosed w/ hynpic headaches almost 3 years ago. Generally get every night with VERY..."

@kmsb I am like you. I diagnosed my own hypnic headaches and was just given Indocin at bedtime by a headache doc who agreed. It is working for me.
As per headache doc, I can still get daytime headaches and can use Imitrex and it is also possible that nose and eye pain is some trigeminal activity - also as per the headache docs.
The doc said we can have multiple types of headaches.