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gailmarienewton avatar

invasive lobular carcinoma and invasive lobular in situ

Breast Cancer | Last Active: Mar 30 4:07pm | Replies (51)

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@gailmarienewton My ILC was ER+, PR+ Her2- Stage 2 Grade 3. I also had SO many doubts about making the right decisions for myself. My oncologist recommended neo-adjuvant chemo to shrink the tumor BEFORE surgery and pushed to begin in a week , and I chose surgery first after a second surgeon opinion. Then when the margins weren't clear after surgery, I wanted to kick myself thinking I made the wrong choice. I then had adjuvant chemo.
Still, I blamed myself thinking I ruined my chances for reconstruction.
A year later I read a study indicating that adjuvant surgery for ILC was better for predicting less recurrence than neo-adjuvant surgery. Who would have figured? And I'm happy being flat as there are risks with implants.
I think we all make the right decisions for ourselves and I would encourage you to check inside with your intuition to "feel" into what's right for you. You can't go wrong!

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Replies to "@gailmarienewton My ILC was ER+, PR+ Her2- Stage 2 Grade 3. I also had SO many..."

@brightlight66 I had understood that ILC does not respond to chemo. I am surprised that it was recommended for you. Did you have radiation also? Was it a single mastectomy or double? What medication are you currently on? Thank you for sharing.