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invasive lobular carcinoma and invasive lobular in situ
Breast Cancer | Last Active: Apr 9 5:43am | Replies (55)Comment receiving replies
Thank you all so much. I am worried that I will not make the right decisions for me and appreciate any help. I had a biopsy after 2 mammograms and ultrasound. The invasive lobular carcinoma is a Grade 2 and there are some cells outside the core that are LCIS. I am ER+ and PgR+. I am leaning towards a full mastectomy...I do have leukemia, CVID, and anemia. I am very active, eat healthy, and exercise...just very fatigued since August. Wednesday....more tests...MRI and another ultrasound. PET scan coming up....probably not until Saturday because I have cancer treatment on Thursday for leukemia which makes me ill for a couple of days. But...always smiling....just worried.
Replies to "Thank you all so much. I am worried that I will not make the right decisions..."
@gailmarienewton Good luck with all treatments and after exploring all options trust your gut; you know best what your body can do and what treatments you feel comfortable with.
Maybe start a new question/conversation with a subject like "leukemia and ILC advice"? One of the Mayo mentors will probably read this soon and may suggest the same, or refer you to past thread on leukemia and ILC - or post links to information for your dual diagnosis. Keep smiling and know we are here to support you. Have a great day!
@gailmarienewton I think having confidence in your oncologist & surgeon makes a huge difference! I traveled a ways to get treated at a great cancer center in Seattle, rather than my local medical center. The cancer center was less convenient but it was infinitely better for me. I followed all their advice. I was stage 1 & had lumpectomy, 5-day radiation & now take half-dose (10 mg) Tamoxifen. No regrets so far! Sending best wishes to you!
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@gailmarienewton My ILC was ER+, PR+ Her2- Stage 2 Grade 3. I also had SO many doubts about making the right decisions for myself. My oncologist recommended neo-adjuvant chemo to shrink the tumor BEFORE surgery and pushed to begin in a week , and I chose surgery first after a second surgeon opinion. Then when the margins weren't clear after surgery, I wanted to kick myself thinking I made the wrong choice. I then had adjuvant chemo.
Still, I blamed myself thinking I ruined my chances for reconstruction.
A year later I read a study indicating that adjuvant surgery for ILC was better for predicting less recurrence than neo-adjuvant surgery. Who would have figured? And I'm happy being flat as there are risks with implants.
I think we all make the right decisions for ourselves and I would encourage you to check inside with your intuition to "feel" into what's right for you. You can't go wrong!