← Return to invasive lobular carcinoma and invasive lobular in situ

Discussion
Comment receiving replies
Profile picture for anatomary @anatomary

OH - I had Atypical Dutal Hypertrophy (ADH) with a secondary diagnosis (path from lumpectomy of ADH) of Lobular Carcinoma In-Situ (LCIS) in right breast. Having LCIS increases everyones risk of BC in the other breast. I had genetic testing and my lifetime BC score was 35% (that's like 3.5 times higher than the average woman) and since LCIS can evolve into the invasive/metatsatic form, and it is sneaky - hard to detect due to its linear form versus spherical, I had a prophylactic DMX. Path was clear on both breasts and I did not require radio or chem - or axillary dissection. Some cases of LCIS never become invasive - but I had several aunts, cousins on my maternal side who died with BC and had two non-BRCA mutations that are suspect for BC. While DMX might seem extreme to some people my new lifetime risk score is 2-3%.

I will probably not have anymore BC related surgeries; I do worry a little since the lobular form is difficult to visualize and while mine was "In-Situ" I question whether we really know if some of the cells might not have snuck out. I don't focus on that because I am told that chance is really low.

I am happy with my choice of DMX. I chose to remain flat (called an aesthetic flat closure) - once again to avoid further surgeries from rejection or rupture of implants. Please be aware that there is standard replacement of implants due to capsulation, calcification, and contracture around the tissue of the implant (natural process of any embedded device) that happens years out from the initial implant. From other threads (Mayo or other?) I have learned that this is not typically discussed when first offered implants - or sometimes after until a woman complains of hardness, pain, etc. With Best Wishes for clarity in making your decisions and a good prognosis.

Jump to this post


Replies to "OH - I had Atypical Dutal Hypertrophy (ADH) with a secondary diagnosis (path from lumpectomy of..."

@anatomary I just want to speak to the point raised above regarding implants. I found out after I had my implants put in that way you’re taking AI medication’s to suppress estrogen. You are in a greater risk for encapsulation of your implant. My original implants we could stop. The surgery was in May. In September fell a flu shot. My right breast blew up when it turned out I had encapsulation and also a Sonoma underneath the right implant. The surgeon removed it and replaced it with another one. Now I have both rest that are a little bit different. I probably will have to have a third surgery to fix the issue. I think if I have another cancellation issue going forward, I will just opt to also go flat. Not worth it. I hope you are able to make your decision with all of this help. I know it’s not an easy time right now, but you’ll get through it and things will be better when you look back. Sending hugs.