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Struggling with thyroid regulations
Is there anyone like me out there? I am really struggling to get my thyroid disorder on the right path and there are days where I just feel like a stranger in my own body.
For context, I am a 32 year old female and felt like as soon as I hit my 30s my health went south. I was first diagnosed with hypothyroidism in January of 2024 after having a menstrual cycle that lasted me 10 months straight and after two years my cycles are still out of whack! My mother has thyroid problems as well so I knew it could be possible that I could end up with them as well but she has been stable on her meds for decades and my body just keeps fighting me. I have been on "every color of the rainbow" so to say for doses of my levothyroxine since diagnosis but my TSH levels just always go haywire. I was diagnosed at a 8.3 and after months of titration and maaaany lab draws I was able to come down into the 3.0s but would seems to always creep back up. I have been on my dose of 175mcg for about a year now but my levels still fluctuate! I was at a 5.4 in March then jumped up to 11.7 when I was drawn in November now I was just drawn this past Friday and I'm now OVER ACTIVE at 0.12! I always take my medication properly (in the AM, empty stomach, no soy, no calcium or anything else that can interfere) yet these highs and lows have been non stop for two years 🙁 I do have an upcoming appointment with my endocrinologist this week but it always seems to be the same song and dance of "let's see how the labs are next draw".
Any advice from others who have been down this looong windy road of continuous lab draws and dose changes? How long did it take before your body regulated?
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Have they checked your parathyroid? It is located on the backside of your thyroid. If that gets out of whack, it could affect many different things in your body.
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1 Reaction@minnesota10 hello! Yes my parathyroid was checked at diagnosis and was within normal limits. But i should ask my new endocrinologist about perhaps doing a retest since things still seem off!
Have them do a complete thyroid function test. This is like 10-11 different things they check. I had low NORMAL TSH but hypothyroid symptoms for a year and a half. They kept saying that I couldn't be having these symptoms because my TSH was normal. When they did the full thyroid function test, 7 of the 10 numbers were off. The worse one was the reverse T3. I was suffering from a thyroid conversion syndrome. I am now taking a natural thyroid supplement for this along with my Synthroid and my TSH yesterday was 1.38 which is perfect. My symptoms are gone and it only took 4 months to fix!!