@laura1961
Indeed, AEDs (anti-epileptic drugs) often come with significant side effects. This is exactly why it's so important to find a doctor who is not only an epilepsy specialist, but also truly caring and attentive to their patients, carefully adjusting medications and dosages until you find the best balance between seizure control and manageable side effects. This is a process that requires patience from both doctor and patient, but for me, it's been more than worthwhile!
I know it is said there's limited hope for medication control after trying two AEDs without success or tolerating them. But my doctor takes a different approach. Since surgery would bring me more harm than benefits, we're continuing to explore medication options.
Last year, I stayed almost 8 months seizure-free, which was wonderful progress. But then some focal seizures returned. Right now, we're working together to understand my current patterns and make adjustments to my treatment.
I know the epilepsy journey can be frustrating at times, but finding the right doctor truly makes all the difference.
Chris