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Cortisol deficiency, but with weight gain
Autoimmune Diseases | Last Active: Feb 6 6:05am | Replies (98)Comment receiving replies
@mh10
OMG, this is the story of my life. I'm almost 50 & I've been BEGGING doctors to help me since my 20s, but my labs are "normal" (they're not really, but I've been told the results that are abnormal, like low cortisol or albumin & abnormal red blood cells, are okay to be "abnormal", that it's actually normal) so even if the doctor is shocked by my symptoms when I go in, when my labs come back, all my symptoms get dismissed. Worse yet, my mother died suddenly before 50, my aunt died suddenly in her early 70s...neither with any sign it was coming other than these symptoms I share with them...and now my 29 year old daughter is developing symptoms!!!! It's been one thing to lose hope, to resign myself to a shorter life than my grandmother, (my mother & aunt's mother), her sisters & mother, who lived into their late 80s to over 100, but the just as futile desperation to save my child is another thing entirely. I don't know what to do next. I've tried going to universities like the University of Pittsburgh with even worse results. I find myself wondering if I need to go to someplace like Cleveland Clinic or Mayo Clinic or Emory University or Stanford University...or if the extra expenses of seeking out these & similar institutions, including the costs of travel & lodging, would just end up wasted on more of the same. 😭
Replies to "@mh10 OMG, this is the story of my life. I'm almost 50 & I've been BEGGING..."
Have you have a complete body PET SCAN, also fasting cortisol blood test plus complete hormonal panel and complete thyroid panel ?@zmcarver
If no help from current Endo get a new one, NEVER ACCEPT A DOCTOR WHO WON'T LISTEN TOO YOU@zmcarver
@zmcarver In my experience, conventional medicine does not allow for the time or resources to solve chronic issues. The only time I've made progress is with a functional or holistic MD. Functional medicine offers so many more detailed tests, that can show so much more than standard bloodwork. My functional medicine doctor ordered the DUTCH complete test and NutrEval test through Rupa after my first appointment, and the answers to decades of symptoms were right there. I would suggest finding a functional medicine practitioner in the state that you live in, so they can also prescribe medication if needed. In some states NPs and PAs can also write scripts. Genetic testing has also provided answers for me and my daughters, and their future children. I used sequencing. My functional medicine doctor uses dnasupplementation.
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@zmcarver I struggled with the same problem for years until I insisted on seeing an endocrinologist. They ordered an ACTH test, which finally helped identify the underlying issue. I strongly recommend finding an endocrinologist or seeking care at a nearby university clinic, as they often have more experience with complex or overlooked cases.
Here is some information on high or low cortisol: https://swaresearch.blogspot.com/2023/10/cortisol-endocrine-system-hypothalamic.html