@laura1961
Hi Laura
I completely understand that feeling of wanting to give up on doctors. But as I shared in my post, I'm so glad I kept searching until I found the right doctor to truly care for me. It made all the difference.
Several members of our group have been treated at Mayo Clinic and might be able to share their experiences with you: @dannoyes, @keeg1010, @royanthony, @tchandos, @absentsenior, and @patrassi. Feel free to reach out to them if you'd like to hear their perspectives.
Since you're in Australia, it would be wonderful to find a good epileptologist closer to home. Mayo Clinic might also be able to refer you to a specialist in Australia.
Please, keep persisting!
Chris