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MAC & Bronchiectasis | Last Active: 3 hours ago | Replies (5)
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@deestrada Here are a few questions raised by your post -
Are you seeing a pulmonologist who has experience with "refractive" MAC infections? Those are infections that seem to be gone, and then come back.
When you say that you have had 3 negative sputum tests, what was the period of time? The "gold standard" is to continue treatment for 12 months after the last positive culture.
Finally, has the cavity diminished in size at all during treatment?
Are you being treated by a pulmonologist who specializes in Bronchiectasis and MAC?
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@sueinmn I’m not sure if my pulmonologist has experience with refractive MAC. I had my first infection in 2012. Was treated with the Big 3 for 16 months. Apparently came back about 6 years ago but not confirmed or treated, cavitation and MAC confirmed in 2024. The cavitation is 3 cm and has not increased in size. My infectious disease doctor and pulmonologist both specialize in bronchiectasis and MAC treatment, thanks for your questions.