Connect
THORASIC SPINE COMPRESSIONS AND ORGAN CROWDING
I was told this by my doctor and internet info, that depending on the severity of the thoracic compression fracture, organ crowding can happen. The spine can cause some kyphotic changes ( hunching). In severe cases, it can cause respiratory issues, and GI issues.
After my compression fractures, My abdomen started protruding outward...like my body was folded in half. Has this happened to anyone? I also keep getting this sloshing sound ( like water stuck in my gut). It is really loud. The sound is different then the normal gurgles. There is no pain. Also I have experienced more constipation, no matter what I do to help.
I have been on Tymlos for six months.
Any feedback I will appreciate. Thanks
Like
Helpful
HugInterested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
Connect
@harryboy7
I don't know either. A lot of people on here have said they titrate on the dose. That was never an option for me..first dose, the doctor stabbed me with the full dose and it was awful for about 15 minutes. She said the next dose would be fine. She was right, I had no further side effects. Are you taking it on an empty stomach? If so, maybe eat a few saltine crackers and ginger ale 15 minutes before? Or an anti nausea pill, if cleared by your doctor.
I'm curious why you haven't told your doctor you stopped the treatment?
How long ago did you stop? Possibly there is another treatment you can take. Going with no treatment seems risky to me as you may be losing what you gained from the six months that you did take TYMLOS.
I had a DEXA as soon as I started TYMLOS so we had a baseline marker. Another DEXA at one year, which showed great improvement, and will have a third DEXA at my two year mark. My doctor ordered the first two and I feel certain she will order the third.
Who said no to your DEXA? If your doctor orders it, most insurance will cover it. The out of pocket, if you pay on your own, is around $100, but you can get an exact amount from the facility that would do the scan. It's no big deal for your doctor to order it.
If your doctor is going to be negative about you stopping...be patient, you stopped without consulting him first and may have delayed your progress by doing so. Hopefully, that is not the case. It's very possible he could have put you on another treatment. But if you are uncomfortable talking with your doctor, it's time to shop for another one.
Let me know what you decide to do. But PLEASE go on something.
@tillymack I just started the BHRT about two months ago. The nurse practitioner who prescribed the bio-identical cream (applied 6 out of 7 days a week) said it would probably help with sleep--she was right. I want to find a PT at a facility that has equipment similar to machines in the gyms--so I can know which are safe for me to use.