@jeff97
So glad your vision is ok, after your scares. My diagnoses came within a week of each other--PMR & then GCA because of the hallmark symptoms over 3 weeks that I hadn't mentioned to them prior--until I thankfully read about & identified 100% with! I tend to downplay pain & don't like to complain even to doctors--big mistake this time around! Two trips to urgent care set off internal consults with various specialists & various imaging modalities (that's how they found my small brain aneurysm while looking for stroke signs), which turned out to be a way better route than just going to see my family med doc. They screened me head to toe, brain, aorta, organs, etc.--very thorough, thankfully! It took over 2 months to be able to get in to see a rheumatologist--in short supply, even in major metropolitan areas. With the PMR Diagnosis, the urgent care internal consult specialists started me on 20mg Prednisone, but then I got worse fast (could barely walk) & confided about the GCA symptoms & they immediately bumped it up to 60mg. I don't know how long PMR had been brewing before I could barely walk--but the descent was quick to the crash. I know I was slightly aware of muscle weakness, stiffness, achiness & changes & odd symptoms for me, but ignored them over the summer. I remember at least 3 weeks where it was really painful to chew & I was just going to switch to yogurt/soup, etc, until it resolved, ha! After the Dx of PMR came, I read about it and, thankfully it mentioned GCA being a common partner Dx or I wouldn't have told the docs that I'd had both the classic jaw & eye symptoms. I took Prednisone 7/31/24 - 6/19/25. So, been off Prednisone for 7 months now. No withdrawal effects from Prednisone (slowwww taper). Tyenne started 9/11/24: 2 months of weekly injections and switched to monthly infusions (weight-dosed) 12/6/25. No side effects from Tyenne that I can discern.