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@jeff97

Hi again from Julie. Did you sustain any permanent eye damage from your GCA vision loss episodes? I hope not. I had swirling vision in both my eyes (I think it was both) where I couldn't see because everything was out of focus for several minutes. It was like a blizzard where I couldn't see objects out the windshield (luckily my husband was driving me to urgent care already). Two episodes of this a week apart. But the opthalmologist verified that no permanent damage was done & now optometrist monitors. I also had several weeks of jaw claudication & months of night sweats & joint involvement, esp. shoulders & hips.

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Replies to "@jeff97 Hi again from Julie. Did you sustain any permanent eye damage from your GCA vision..."

@julieahp
My vision turned out ok. The IVs of high dose methylprednisolone followed with prednisone took care of all my symptoms.

It sounds like you had some PMR to go along the GCA.

I was sick with PMR for about a year before being diagnosed, and with GCA for about 5 months. I went to 2 doctors during that time, but they were the wrong types of doctors (orthopedist and ENT) and didn't diagnose the diseases.

Are you off of prednisone now? If so, how long have you been off of it.