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Anyone diagnosed with warm Autoimmune Hemolytic Anemia?

Autoimmune Diseases | Last Active: Mar 10 2:27pm | Replies (24)
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Profile picture for kitoibay2 @kitoibay2

I now have monthly blood tests to keep track of RBlood cells since July 1 2025. No bad results as of yet but will keep eye on this strange disease as it is said, it could return, or not. Thanks for yr input.

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nacimiento | @nacimiento | Jan 19 8:06pm

@kitoibay2
You are correct, this is a strange disease. After 13 years of battling what we "assumed" was WAIHA, I insisted on a bone marrow biopsy. I also had a cat scan with barium plus contrast. So the good news is I don't have the dreaded disease!
I have myelodysplastic syndrome (MDS) with SF3B1 mutation.
Squibb Meyer actually has a medication specifically for the mutation that causes my symptoms', those that exactly match WAIHA!
Tomorrow I have an appointment with the oncologist for a game plan. It looks like my monthly retuximab and IVIG infusions will stop. As well, my $400.00/day Tavalisse pill will discontinue. Yahoo!

Ask your doctor about the bone marrow biopsy. Perhaps you will find a similar solution.

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