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DiscussionIntestinal Metaplasia: What do you do to lower the risk of cancer?
Digestive Health | Last Active: Jan 29 7:24pm | Replies (120)Comment receiving replies
Replies to "I was just diagnosed as well. My gastroenterologist told me he would see me in a..."
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Hi, @teresacorrea - that is for sure is hard. Anytime doctors use the "C" word, it makes patients shudder, even if it's called "precancer," "low-risk cancer," "slow-growing cancer," or the like.
I personally was told when I learned the laboratory had found a neuroendocrine tumor (the doctor had removed like it was a polyp, I believe thinking it was a polyp) in 2023 that it was a "low-risk and slow-growing" type of neuroendocrine tumor. Despite the adjectives downplaying the risk, my fear was pretty high because my father-in-law was at that time dying from a neuroendocrine tumor (originating somewhere else than the rectum, where mine was found), and I could not hear even "encouraging" words attached to the "C" word.
That was scary news. The upshot is that after three to four months of testing, the doctors finally determined I had 0% of cancer left in my body, thankfully. But along the way, during all this testing, I had moments of tears streaming down my face during scans out of sheer terror and random crying just sitting on my couch at home, again, just because I was scared sometimes.
It would be completely legitimate to go back to the gastroenterologist who told you he'd see you in a year and that he was doubtful the precancer would turn into cancer to see if he'd meet with you again and explain it in further detail. If he's willing - even for a video chat - it might also be a good idea to have a friend or a spouse with you who can also hear what he says and be available to go over it again with you at any moments of doubt. It is a big deal that you understand why it is or is not worrisome, as you have to live with this information floating around your head for the next year.
If by any chance this gastroenterologist is not available, you might ask your primary care doctor to meet with you or call you to talk it through.
What do you think about having a further discussion to completely understand the "precancer" and then the "Don't worry about it"?