@marbe6161 Hi Marnee, thank you for your comments. I try to stay active in the community and keep up with family and friends. So far my symptoms are irritating, but not disabling. I am
starting on a new medication on Monday, and worry that it might upset the delicate balance of my lifestyle, but it may slow down the progression of my illness (ALS). My daughter lives in England, and she introduced me to something which is only starting to be introduced here in Australia. It is a yellow sunflower badge or lanyard. It signifies "I have an invisible disability". In
England they have signage on public transport saying that the person wearing this symbol has a disability which is not visible, so please give them a seat and be attentive to their needs. My daughter wore this badge for a few months after serious back surgery. She couldn't stand up for any length of time, and relied on kind people to offer her a seat and help her on and off vehicles. I hope it catches on here too. A Gerontologist! I think I need one of you too, now that I have tuned 72. Ironically, my mother, who is 95, is fit and healthy and still works in her garden! Wishing you all the best, @ellu