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Whoever is telling you that proton therapy is not appropriate for that cancer is either badly uninformed or unethically pushing you toward a treatment from which they derive compensation. If I were you, I would immediately get a second opinion from a world class facility like Mayo. @justwow

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Replies to "Whoever is telling you that proton therapy is not appropriate for that cancer is either badly..."

@jfh1970
MSK and John’s Hopkins. Perhaps due to the location of the involved lymph nodes. At this point, I have been overloaded with information and emotions and I just don’t know what to do. But they both told me that proton treatment is known to cause bone death and so they’re worried about me developing ORN.

@jfh1970
I’ve had two opinions so far. Both said the same thing, regardless of whether I am in a trial or not.