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Is There a Cut Off Age for Kidney Transplant? Jan 20 1:21pm | By Mayo Clinic Transplant Staff (@mayoclinictransplantstaff)Comment receiving replies
@future
Good morning @future 🥰
Congrats on wonderful blood and urine lab results...that's the goal!
Most of the kidney transplant patients on Mayo Connect can probably jump in too with their similar story.
I think a lot of us (including me!) had to get injections to bring up our wbc when their immune suppression meds were kept too high (on purpose) to avoid acute rejection in the beginning.
After that crazy time, the team starts to adjust the meds down according to what's happening. For me, it was CMV virus, then the BK virus so I was taking 250mg Cellcept twice a day and 2.5mg Envarsus XR once a day.
Recently, my Allosure blood test (a quarterly blood test that looks for rejection markers in the blood) started creeping up, so now I take 500mg Cellcept in the morning and 250mg Cellcept in the evening with my morning Envarsus XR.
So, if I am reading this correctly, you will only have one week of tapered steroid, right?
And you are back to 500mg Cellcept bid and they increased your Envarsus XR.
What is your new target TAC blood level range?
How often will you test your TAC level to make sure it stays in the new range?
Did your provider mention the idea of taking the Allosure blood test to begin to monitor for signs of rejection? It's non-invasive and it rates the probability of rejection. There are a couple of companies that do this test.
I personally don’t like invasive biopsies unless absolutely necessary, so maybe the quarterly blood test could help keep an eye on the rejection question for you moving forward.
Also, if your Allosure result is good, that may give your doctor confidence to lower your Cellcept back to 250mg bid in the future.
My doctor decided to keep me at 500mg in the morning and lowered to 250mg Cellcept in the evening.
It sounds like everything is beautiful and they are doing a nice job of heading off any potential inflammation for now.
Prepare yourself for on-going med adjustments on this journey. It's the way to navigate the on-going rejection vs infection issue and keep the kidney and the patient happy and healthy.
Enjoy your fantastic kidney function results!
Replies to "@future Good morning @future 🥰 Congrats on wonderful blood and urine lab results...that's the goal! Most..."
@hello1234
Ok about TAC level, they asked to keep around 8 . Is it under my control? No. But this is the level they want to see now. Waiting for blood test results of this week.
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@hello1234
Good morning to you too!
I never heard of Allosure blood test , I will ask about it.
Honestly o rather have suppressed immune system than living in areas about possibility of rejection that lately I have been going through. The pro user mentioned a possible biopsy in 6 month! I actually said “more holes in the new kidney!” She said it is the only way to make sure. I did it twice so far once in 4 month follow up and second in 1 year follow up. Both were not pleasant experience from the pain point of view.
I am asked to do blood test on weekly basis fir a month. I now think what blood test is for if it dies not show markets of rejection. Predominate week is complex few days ago. So I now on Enversus 5 mg plus 500mg Cellcept in the morning and o ly 500 mg Cellcept in the evening. I rather high doses than facing possible rejection. I requested a zoom appointment with the original (year 1) provider to ask questions , I wonder is lowering cellceot in the second half of year 1 to 250 mg twice a day was not a good move as the immune system needs to be suppressed all the time.
I think you had other questions. I will read your response again.