Did your doctors do a Chromogranin A test to determine if you have high levels? That tipped off my GI to look for and locate my NET in my small intestine during a colonoscopy. I was exhibiting symptoms that made them suspicious. After they did a biopsy and confirmed it was a NET they did a Ga68 DOTATATE PET scan and the doctors were able to see that it had spread throughout the surrounding lymph nodes in the mesentery. That particular PET scan is the gold standard for locating NETs