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Profile picture for Mike @dadcue

I like the idea of no treatment plan.

Do I really want to get a work-up for a NET. Something suspicious was visualized in my ileum on an abdominal CT that was monitoring kidney stones. I was referred to GI and they accepted the referral. My appointment with GI isn't until May with instructions for Chromogranin A and serotonin levels prior to the visit. It looks like a capsule endoscopy will be done also. It only says possible NET.

I'm not symptomatic. I don't think this work-up is necessary. I have a high insulin level but I don't know if that has anything to do with it. I already see an endocrinologist and I'm on Wegovy for metabolic syndrome. Should I ask the endocrinologist for an opinion? My primary care doctor wrote the referral to GI.

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Replies to "I like the idea of no treatment plan. Do I really want to get a work-up..."

@dadcue NETS is most commonly found in small intestines. High or low blood sugars can be a NET symptom. Please follow up & get your blood work done early. I hope you do not have NETS, it’s a horrible, chronic disease.

@dadcue Hi Mike, how are you? With all due respect, my suggestion is that you go for that checkup, and if you can get the chromogranin A test done, that would be ideal. While it doesn't tell you anything on its own, along with other symptoms, it could help determine if it's something serious or not. I understand that you might be tired of going to doctors and all that, but it would be good to get that checkup. Good luck.