Neuroendocrine Tumor - no treatment plan method

Never seen this chart before.

Yes it was 0.6mm x 0.4mm and was removed during a colonoscopy. The pathology report came back as a carcinoid tumour with clear margins as seen below.

Depth of invasion : into submission/mucosa and deep resection margins clear/tumor at a distance of 0.3 mm from stromal resection margin

I will have a follow up colonoscopy in a year from the date of the first one but this is from the request of the family doctor not the oncologist.

They did do a ct scan, ultrasound, and mri which didn’t show any metastasis…but they didn’t do the Dotatate scan.

@meleve
I'm glad that your family doctor has requested a follow up colonoscopy. That will help monitor the situation. What symptoms are you still having? How are you feeling in general?

I've never seen a chart like this before, @meleve. Thanks for sharing it.

I’m feeling good overall. I had h-pylori as well which I recently received treatment for and seemed to clear up all the symptoms I was having. So as of right now I don’t have any symptoms and feel pretty good. I also suffer from hashimotos hypothyroidism so that went very out of whack when I was dealing with all of this because of stress…any sort of additional stress does cause my instability to my thyroid which is generally well controlled. So now just a mater of getting that back in sync but overall I feel good…not great but good. Thanks for asking.

I like the idea of no treatment plan.

Do I really want to get a work-up for a NET. Something suspicious was visualized in my ileum on an abdominal CT that was monitoring kidney stones. I was referred to GI and they accepted the referral. My appointment with GI isn't until May with instructions for Chromogranin A and serotonin levels prior to the visit. It looks like a capsule endoscopy will be done also. It only says possible NET.

I'm not symptomatic. I don't think this work-up is necessary. I have a high insulin level but I don't know if that has anything to do with it. I already see an endocrinologist and I'm on Wegovy for metabolic syndrome. Should I ask the endocrinologist for an opinion? My primary care doctor wrote the referral to GI.

Can you get the blood test done prior to meeting with your Endocrinologist? They would have some idea dealing with the changes in hormone levels. My Chromogranin A levels were high and that tipped off the G.I. to look for a N.E.T. when doing my colonoscopy. I was exhibiting G.I. symptoms that led them to do blood work and collect some stool samples to rule out parasites and such. You might want to bring it to your Endocrinologist's attention. I would be proactive if I were you.

@dadcue NETS is most commonly found in small intestines. High or low blood sugars can be a NET symptom. Please follow up & get your blood work done early. I hope you do not have NETS, it’s a horrible, chronic disease.

Get another opinion asap. I had four until I found the right Dr.

@fraaseo

I already have more than my fair share of chronic inflammatory diseases.