@hrhwilliam
I’m not sure I follow you. I was am very much in favor of proton treatment. I want that for my own care, however, I’m told that there is a high instance of ORN that wasn’t previously published or really made known to us patients. What do I do? I was told this by a prominent doctor at MSK. Would she lie to steer me away from proton therapy? My primary site is my left Palatine tonsil. I have a few enlarged nodes in my left neck. I have a growing node in my right neck. Two institutions both told me proton treatment would not help me. That ORN was a big risk….. reading your post. I’m really lost and fear I’m just wasting away valuable time.
I need to be treated. I don’t know what to do every month. It grows a little bit more…..