Has anyone been diagnosed with pseudopheochromocytoma

@lisa11 I've read that also about the link between past trauma and it kinda makes sense to me but why all these years later does something like this resurface. Not much is known about it also.

@lisa11 have you had a sleep study? I didn't think I did either, I actually thought I slept really well.

Hi I had my first pheochrimacytoma aged26
Second age 46 3rd age 73
4th age 76 has anyone had ablation treatment to blast 3 still more needing ablation.
I'm Sue from uk

@soosybear76

Hi. Pseudopheochromocytoma is not the same as pheochromocytoma. People with pseudo don't have any tumors. Just the symptoms that come with pheochromocytoma. You might want to find pheochromocytoma on this or other other cites. 🙂

Thanks for pointing the correct spelling
I know there is 17 letters but I know the symptoms very well. Are you a
sufferer with the disease Lisa?

@soosybear76

I have pseudopheochromocytoma. (no tumor). My understanding from your post was you have a history of the adrenal tumors or actual pheochromocytoma.

Thankyou for you're reply this disease almost killed me aged 26 I suffered
heart failure.they like to surgically remove my tumours not a pleasant
surgery . This 4th latest metsized
Has been treated with ablation
Treatment. My symptoms were bad headaches sickness they treated me for
anxiety with libriam I carried my first daughter with the problem .
Again with my second daughter
It's a rare illness and does make you anxious . I recovered but was always
told it wouldn't come back but sadly continues recurring. How are you
keeping now what were your symptoms .I've never met anyone who has had
this disease. I live in the 🇬🇧

I am sorry you've had to deal with this the better part of your life. Pheochromocytoma is very rare from what I understand. I read that for every 300 people who have symptoms and get tested, only one will actually have the tumor. Pseudo causes many of the same symptoms because the sympathetic nervous system goes haywire. My symptoms were extremely high blood pressure and heart rate, horrible anxiety, nausea, flushing, dizziness. I would bet you could find a group if you initiated asking on some different forums. Take care.

I wish I had seen this a year ago! I went to the ER with blood pressure of 253/151. They left me in the ER waiting room for 7.5 hours like that and I ended up having a TIA and was hospitalized for 5 days. They tested me for everything imaginable. I left with no diagnosis. FINALLY, a week or so ago I visited my new doctor. I told her my situation and she asked if I had ever heard of pseudopheochromocytoma. This matches all of my issues. Now I await a course of action. I have had at least 5 of these episodes in the past 10 years. So thankful to finally have an answer.

@hackey713

I'm sorry you had to go through that and so happy you're doctor recognized it. Onward from here.