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ddoran9233 avatar

How did you develop your Care Team?

MAC & Bronchiectasis | Last Active: Jan 23 11:05am | Replies (15)

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Check the NTM Care Center Network. NUU Langone is on the list. I think they are a major player in bronc/NTM treatment.

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@ddoran9233 My pulmonologist helped build my team, which includes a Speech Therapist, ENT, and rheumatologist. Between them all relevant tests have been offered and analyzed, mds adjusted and Speech therapy helped with choking and reactive airways. If I test positive for infection in the future, they have an ID doc on staff too.

@sma2 I agree, my only concern is that at this time, I have BE but not NTM which seems to be their primary focus. they are still a center for BE so I will definitely reach out to understand more. I also learned about Mt Sinai in NY. Thank you for your response