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DiscussionWhat Type of Doctor Diagnoses CRPS/Resource re: Treatment
Chronic Pain | Last Active: 6 days ago | Replies (49)Comment receiving replies
Replies to "@rivermaya34 Hi Thank you for your quick reply! By reading your medical journey that makes me..."
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@songfamily2025 Hey - sorry for the delay in response! This week has been one of the worst ever (physically) for me...feeling like I'm being burned alive from the inside out (this is totally new), so touching anything or being touched has been unbearable (still painful); that's why I didn't respond until now. Yes - quality of life is what I advocate for on a daily basis. Even if I only get a few mins or an hour a day (or week), that's good enough for me. Baby steps. I don't set any expectations, that way my hope is never crushed. Bad days - yes. But, I am thankful for any day over none at all. You are NOT kidding about the CRPS - it literally "burns" beyond reason and I wouldn't wish it on anyone. Pain has been keeping me awake most nights here lately, too. I'm so sorry about your traumatic surgery - I can relate there, too. Unfortunately, once the damage is done, it's done; no going back, only forward. I used to think that "standing still" was a setback, but now I understand it's self-preservation and I'm thankful for "time out" or "pause" moments that help bring things back into perspective. Ugh.....that hurts my heart about what you're walking through. At least you were able to have the surgery and get the problem removed before it got ugly! My 33rd bday present three years ago was surgery that revealed colon cancer (they removed it). Sad thing was, I smiled bc my "worst bday" had finally been topped after 22 yrs (my bday is 9/11), so there was good that came out of it. I've been through many depression periods that have ebbed'n'flowed, especially last year, when 7 friends of mine died in 10 days. That took me down hard and fast. The mental paralysis reset my clock battery, which was painful, yet I am very thankful for. Yes, we are in this together! Glad you're here, friend 🙂 There are better days ahead...